| 4-2-01
Dear Family and Friends,
I believe earlier I talked about our little miracle in
progress. There have been times when I had wondered if I was
just wishing, although now I really believe we are seeing a
slow miracle. It would be so much easier if we saw it
immediately, but I guess we need to be patient (that's the
hard part for me).
In the last month I have asked you to pray for her feeding
problems and muscle tone, more specifically holding her head
up. Well, here is a good Praise God, he has answered our
prayers. She is holding her head up beautifully. She still
has reflux but it not vomiting as before, she seems to be
trying to control it. She is even trying to push up more
often on her legs, and she is almost rolling on to her
stomach. She has surprised us a few times rolling on to her
tummy, but it isn't really consistent yet. Once on her
tummy, she is doing great at lifting her head. I know she is
going to be a bit behind in development so we just take one
day at a time.
I also asked you to pray for Stephen. I noticed a change in
his demeanor just that same day and it has continued.. Your
prayers are giving him strength.
Here is another Praise God! Natalia seems to be able to hear
since she has had the tubes put in her ears. She is
happier when not feeling discomfort and she is responding
beautifully. She loves to hear praise and gets excited with
us as we watch her tackle little tasks. We play a game with
her where she has to push up on her thighs to stand. I make
a big deal when she rises on her own. She even gives a burst
of giggle knowing she has done well!! It's very
heartwarming.
With all of the good news, we are still dealing with her
having more discomfort eating/processing her formula than
any of us would care to tolerate. I believe we may be doing
more tests this week to try and figure out what may be still
causing her abdominal pain. Along with those tests, she will
be having an EEG soon, (for her seizures) as well as a
current hearing test post surgery. They will need to sedate
her so please keep her in your prayers. Unfortunately they
won't be able to do these test at the same time so they will
be separate sedations.
I did want to share with you a few stories....
The day before the surgery, as I drove the kids to school,
everyone expressed how much we did not want to change
Natalia. We all loved her the way she was. I explained to
the children how important it would be for her development
and that this needed to be done.
On the morning of the surgery, Natalia was an absolute
Angel. She was not able to drink from 3am on and I was a bit
concerned she would be difficult. She didn't complain at
all. She was so peaceful!! It was very obvious to me, your
prayers were calming her mood. Around 4am I laid with her on
the floor as she was awake. I found myself tearing up and
the tears just seemed to flow. I couldn't figure out what
was wrong with me. Then I realized, God gave us this totally
imperfect outwardly child yet inwardly she was a beautiful
angel. We were now going to change the way God gave her to
us. As much as her cleft lip shocked us at her birth, we had
all have grown to love her look. She looked so beautiful
that morning. She never cried at all through the drive or
pre-op procedures. The power of prayer on this baby so
amazes me!!!! Thank you all again. :)
When we came to see her after surgery, I was happy but not
really expecting what we saw. Her nose of course was
swollen, but she was breathing through her nose. Dr.
Reinisch took the time to give her a mini facial, and
cleaned up her baby blackhead acne. He so believes these
babies should have dignity.
Once home with Natalia, we were not prepared for all of the
changes that would come from her surgery. I felt like we
were starting all over again. (It has been an exhausting few
weeks.) She was in a lot of pain and her feedings were
becoming a problem again. I am happy to say. All that seems
to be in the past. She is smiling again and giggling between
feedings and her painful moments. She still has some
problems, but overall she is still thriving. Thank God,
again.
Today a few Doctors will be discussing which procedures we
are going to take to find out why Natalia has been having
these continuing abdominal pains after feedings, (lately she
has also been having blood in her stools.) Please help me
pray the the Doctors will be guided by Gods healing hand and
wisdom and that together they can tackle this ongoing
problem.
God Bless You All,
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