| Sun, 29 Oct 2000 22:59
Subject: Our little angel,
Natalia, is aready two months.
Hello to you all,
We have made it through another
month. I am happy for the time we
have had with our little Natalia, she is doing better overall,
yet she still has some uncomfortable hours throughout the day.
I'm hoping it's just colic!
She is drinking out of the bottle most of the time, although I
am usually squeezing the special nipple which helps the milk
flow easier for her. She takes a lot of air in during this time.
We use the G-tube for venting, burping and any time she's crying
and I can't figure out what to do. I don't think she likes the
tube and can only imagine what it must be like having a tube
coming out of your stomach. When it moves slightly it
seems to bother her.
We have taken Natalia off some of her medications as it seemed
to just irritate her and she would be more agitated after she
received them. She has been more enjoyable this week and
more alert. She is still fussy at times but some new
babies are anyhow.
We are still sleep deprived and I have to make time to rest. I
was up at least six times last night. Ug! Quick naps seem
to get me through (But not always, if you catch me crying, you
can probably guess I'm real tired. Then the tears seem to flow).
We are still checking into some of the benefits offered by our
insurance and the
support organizations for these special needs kids.
I am trying to stay faithful, and keep prayer in my daily
life, but there are times I just don't want to be here, doing
this. I want to go back to the way it was. But here
we are!!!! I wish I could see the big picture. But for
now, I know I need to live one day at a time. I hope our
days will be more fun as time goes on. Life isn't real fun
right now. I keep thinking if I pray more I will feel better.
But then I get so busy, I find at the end of the day that
I didn't accomplish all that I had hoped in my spiritual life.
Although tonight the kids and I sang the Chaplet of Mercy.
It's a beautiful prayer sung on the rosary. The kids seem
to enjoy it also. I do try and listen to a Catholic Radio
Station. They have some terrific programs on and talk a
lot about the election and opinions with the faith. For
those of you in this area the station is 830am. Listening to
some of the programs give me a little spiritual pick me up while
I am driving. The kids even like to
listen to the Catholic Answers program at 3pm when I pick them
up
after school.
I do see God daily in all of my family, friends,
neighbors, and even people who meet Natalia for the first time.
I do hope that if nothing else, she touches people in a special
way. If her life is to be shorter than most than I pray
that all those whose life she has touched will be blessed with
Gods special grace. I am so thankful for all of you and many
others who are not on my email list. Thank you for passing
the prayer requests on, I know God has heard our prayers and
that he will continue to put his hand of healing on our little
angel.
Last week, my sister brought a friend from her church over to
pray over Natalia. Between these two ladies they had 11
children. Her friend has five, and Marque, my sister, is
expecting her sixth child
in January. It was so amazing that with as busy as their
lives are
that they took some time to come over and pray with our little
angel. As always, I give everyone permission to come pray over
this little Trisomy 13 baby of mine. I know she is here
now because of your prayers. Her eyes are brighter and more
alert this week than last. I see her starting to grow,
slowly, yet she is growing. Thank you for your prayers.
Every once in awhile I dream God will completely heal her and
blow
the medical field away. I would love that!! He has brought
her to a
point of less pain and hopefully more peace for her, that I am
grateful. I guess if we keep BUGGING him he will answer our
prayers
if it's his will. So, please continue to BUG him for
Natalia.
Thanks!
My prayers are with you and those you love, ThereseAnn
God Bless You :)
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